We are looking for:
- Adults who have been diagnosed with cystic fibrosis
- Adolescents (16-20 year olds) who have been diagnosed with cystic fibrosis
- Parents of children who have been diagnosed with cystic fibrosis
Healthcare Opinions are looking to gain an in depth understanding of the experiences, needs and challenges of people living with cystic fibrosis. We would like understand some of the ways patients, and those who provide care for patients, cope with the management of the condition, as well as getting their feedback on some of the inhalation devices that they currently use.
Participation in the study would include taking part in an online community that will last 2-weeks, whereby members will be asked to complete individual tasks and contribute to shared discussions that will require 60-90 minutes of their time per week. The tasks will vary throughout the community but will include activities such as video diaries, group discussions and image annotation. For video tasks members will get the option to video or voice record, whichever each participant feels more comfortable with.
The online community will take place Monday 13th- Sunday 26th January 2020, and as a thank you to each participant for taking part, they will receive £150, via bank transfer, cheque or Amazon e-voucher, whichever they prefer.
If you have any queries about the study or would like to discuss it further, please call Julia on 0161 242 5215.